Kimberlee got a unit of blood yesterday to help her anemia. We also found out her sodium is low (121), so we have been trying to get more food in her to help get that up. Her nausea was less today so she was able to eat more, still not what I would like but more. Ensure drinks seem to be helping. Her pain is being well controlled with a Fentanyl patch, so that means fewer pain pills by mouth, so I think that will help her nausea long term. She's been enjoying the oxygen, she started that last week. She is using it less these days. Usually always when she sleeps and if she gets short of breath during the day. Please don't be alarmed by the oxygen. It really helps her.
We had an MRI of her brain yesterday. We had a baseline done in April which was "unremarkable" and that term made Kimberlee a little sad. She thinks her brain is very remarkable. Yesterday's scan showed a 6mm mass in her temporal lobe. Not too surprising. Lung cancer loves to travel to the brain. So we will keep an eye on that. There are a couple other things on the scan we don't fully understand, but we will find out more as we go. There's nothing too concerning in the scan.
We are really concerned with Kimberlee's quality of life, everyday quality. So we are doing anything and everything we can to enrich her days. Such as the chair in the picture below. The blue chair she had been using was ok but not good enough. So today we took her to a store and found a power one that really fits her body well. It's a gray color that she really likes and she really likes the power option.
Our friends and family here in Yakima have insisted that we have meals five days a week again. The kids love this, I think they hate my cooking. That's ok, I hate cooking it! We are overwhelmed by the generosity of our Yakima friends. They are a great blessing in our hour of great need. Thank you so much!!!
We would ask that you keep her in your prayers. I'm trying to get her to Maui on the 9th of November. Please specifically pray that she will have the strength and desire to fly to paradise. We have a friend's house ready for her. It would be private and beautiful!
Thanks for all you do for my special girl!
Thank you for sharing this. I am thinking of all of you during this tender time. My heart aches for all of you. She was so darling. I loved her right after I met her. Please know you are in our thoughts and prayers.
ReplyDeleteI’m so glad I found this. I have fond memories of playing with Kimberlee when we were kids. I’m sad that our busy lives and many miles separated us. I cried when my mom called me today about her passing. I’m so grateful for our knowledge of eternal families and pray for your family at your great loss at this time. I wish I could be there at her funeral, but I’m too far away in Utah. She was one of my favorite cousins.
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